Singer Halsey’s Life with Endometriosis

Singer Halsey’s Life with Endometriosis


It’s estimated that one out of 10 women in the U.S. struggle with endometriosis, that includes the woman behind the hit you’ve all on the radio, “Bad At Love”. Grammy-nominated singer and songwriter, Halsey, who is here with us, so please welcome Halsey to the show! (audience cheers and claps) ♪ But you can’t blame my for tryin’ ♪ ♪ You know I’d be lyin’ sayin’ ♪ ♪ You were the one, ooh-ooh ♪ ♪ That could finally fix me ♪ ♪ Lookin’ at my history ♪ ♪ I’m bad at love ♪ Hi guys. So I feel like every woman who has dealt with endometriosis has their own individual story and journey, and clearly you’re here today for a reason to share your story. Yeah, absolutely. So, you know, the thing with endometriosis is a lot of it comes down to, I think doctors can tend to minimize, you know the female experience when it comes to dealing with it. My whole life, my mother had always told me, “Women in our family just have really bad periods.” It was just something she thought she was kind of cursed to deal with, and I was cursed to deal with. And that was just part of my life. When I started touring, and playing concerts, and traveling, the stress and the strain on my body really started to enhance the symptoms and make the experience a little bit worse. I was fainting, all the time. And I got misdiagnosed with chronic fatigue, with anxiety, they were telling me I was fainting because I was anxious. I said, I am anxious, because– Well yeah, it’s understandable, right? Having anxiety after all of that. They probably called it stage fright. Yes, yes, and it wasn’t until one of the first tours I’d ever done, I woke up in so much pain, I was bleeding so much, it was more blood than I had before. And our tour bus was parked outside of a hotel. I was so sick, and I was in so much pain, I thought I was going to vomit, and tour bus plumbing is not great for vomiting. So I wandered my way out of the tour bus into a hotel, into the lobby, and managed to get to a bathroom, and a couple minutes later I woke up on the floor in that bathroom. And I pulled myself up, and I walked back out through the parking lot, collapsed in the street, outside of the bus, and my tour manager had to take me to the hospital. And the whole time I was there, no one knew what to tell me. Dehydration, stress, anxiety, and I’m saying, “What about my pain?” A lot of the time, they can make you think it’s in your head. When I finally got my endometriosis diagnosis, was with Dr. Aliabadi, she took one look at me and I explained her my symptoms, and she said, “You have endometriosis.” And it was so bittersweet, because it was like the relief of knowing I wasn’t making it all up, and I wasn’t being sensitive, and it wasn’t all in my head, but it also kind of sucked to know that I was gonna be living with this forever. A couple of months later, I was on tour, I found out I was pregnant. And before I could even really figure out what that meant to me, what that meant for my future, for my career, for my life, my relationship, the next thing I knew I was onstage miscarrying. Oh. In the middle of my concert, and the sensation of looking a couple hundred teenagers in the face, while you’re bleeding through your clothes, and still having to do the show, and realizing in that moment, I never have to make that choice ever again. Doing what I love, or not being able to because of this disease. So I put my foot down, and I got really aggressive about seeking treatment, and I had surgery a year ago, and I feel a lot better, so it’s good. (audience claps)

100 thoughts on “Singer Halsey’s Life with Endometriosis”

  1. I thought I would have never been able to have a child because of my Endometriosis, my period used to be clots of blood just flowing out of me and my legs felt like they wanted to give out….but since I met my gynecologist he examined me and basically told me anything is possible so I tried and Dec 2018 my pumpkin was born healthy and I’m doing fine…have faith that it will work out 😊😊

  2. People need to take this more seriously. I’ve been dealing with this for years and everyone belittles my situation. I even lost my job! Still haven’t been diagnosed they just continue to want to force pills down my throat. It’s frustrating when your life has to stop or you miss work, family thinks you’re overreacting when you’re clearly not. I legit feel like I’m dying, idk what other way to describe it but The amount of pain I get, nearly fainting, vomiting etc. is huge toll on my body. It takes so much energy to even get out of bed to use the bathroom because once you make a sudden move it’s like your body knows and all those cramps start hiring you hard. I have to take narcotics just to ease the pain and even sometimes that don’t work.

  3. My sister has STRUGGLED with this condition. I remember being scared when I was younger because my sister would be crying in so much pain at times. My sister had one particularly bad night and woke me up from her painful moans and whimpering. I went in her room and asked if she was okay. I was 9 she was 14 anyhow her bed was bad bloody and mom took her to the hospital and they finally diagnosed her. I feel for any woman going through this.

  4. BC isn't always the answer or cure…and I've tried pills, ring, IUD…none helped and I had bad side effects or new side effects. Had a laparoscopy at 25 to remove multiple golf ball size cysts. Took Naproxen for about a decade. Then it stopped working. Now I can't take it because not only it doesn't work, it rips up my stomach. Consulted top OBGYNs for a total hysterectomy at 24. And the government Health and Human Services Women's Studies confirmed what they all said…cysts can still grow back and your pain isn't guaranteed to be reduced at all. So that's no helpful. I've had periods for years that sound like I'm giving birth because I'm screaming bloody murder. Doesn't help both sides of family has this history. And OBGYNs refuse to prescribe opioid pain meds, which is the only thing that works. I've landed in ER in past where I needed IV morphine it was so horrible. Heating pads or heat patches do nothing for years now. My TENS unit for my painful upper body muscles now started to aggravate my pain. Tried Livia TENS and it's okay in conjunction with Vicodin. Doesn't help I have autoimmune and inflammatory diseases which make my endo worse. And it doesn't matter if the Dr is male or female. Both are uncaring and unwilling to prescribe opioid pain meds despite trying all the aforementioned, as well as acupuncture and natural supplements. Damn CDC who admitted lying about the numbers of false opioid epidemic where legitimate decades long chronic pain sufferers are now cut off and many committing suicide.

  5. I have a whole new respect for her after hearing her story, I respected her before but wow, she's been through the ringer

  6. Halsey is such a beautiful woman. I am very pleased she got diagnosed at a young age and has been treated. She is one of the lucky ones.

  7. The weird think about this is that she seems like she didn't really care about losing her baby but that it was embarrassing to bleed on stage. Then again, she believes that a fetus isn't really a human and isn't really alive so I guess that explains why she doesn't care

  8. She's opening about her endometriosis and you guys are belittling her by bringing up her doing drugs? What does that have to do with anything? I have and it wasn't caused by any drugs; and it really can't be. She didn't say she was anybody's role model or ask to be. She's done a lot more with her life than most of you ever will. You guys have probably caused more pain and destruction than she has. Grow the fuck up.

  9. "they can make you think it's all in your head" this was so true for me. I am glad I am not the only one or that I am not going crazy … Problem is even after having surgery it could be that you still have don't a clear solution. So little research on this. It's crazy

  10. It's took nearly 6 years, several hospital visit, and more than 15 doctors to diagnose me with endometriosis. I couldn't bare the pain any longer and these doctors, especially my gynecologist kept telling me it was all in my head and that I was exaggerating the pain. I would leave the doctors office and sit in my car and cry. I started to believe I was going crazy, but I didn't give up on trying to find out what was wrong. It took one long and stressful hospital visit to get diagnosed. Now , I have to decide to do the surgery or not. Surgery is scary, but the pain is horrible. These doctors need to learn bedside manners and do their job. We are paying you to help us find out why we are ill; we do not need you telling us we are making things up or that our debilitating pain is exaggerated. If you as a doctor can’t help your patient then direct us to a doctor than can.

  11. In 2016, for the first time I was bleeding for 3 weeks and had to go to the hospital because I looked so pale and my parents got scared. The doctors held me there for hours until it was really late and they had to find me a room to sleep in. The next day they told me they've made a decision to give me a blood transfusion. After that they gave me iron, vitimon c, birth control and stole softener and sent me back home to take all those things daily. They didn't even tell me what was wrong with me until 2017 when it happened again around the same time (September). I was bleeding for 2 weeks this time but I wasn't as sick because I had the iron pills. I went back to the hospital and they finally told me I have Williams Burg blood disease. So forever I have to take birth control to stop my bleeding unless I choose to have my period for a week so my body can clean itself out. I mean, there's a reason women have periods in the first place. I don't think its healthy for my body not to be able to clean itself out like its supposed to every month. As long as I'm taking iron I'll be fine for that specific week. Theres something else I have to take if I ever end up in a situation where I'm losing lots of blood again like surgery or an accident. This isn't Endo but it's related to periods so I thought I might share my issue…

  12. Endometerosis is no joke! It's EXTREMELY painful and pushes on all your organs and then you have that type of pain too! I also had the surgery and then felt SO much better!

  13. I love you Halsey thanks to you I had surgery today an have a bad case of Endometriosis an I haven’t been able to get pregnant she removed some I have one full blocked tube an one open an we have to do ivf I don’t have money for that my fiancé has cancer we already have his sperm frozen so we are thinking maybe the mother of his 5 year old son to be our Surrogate .. I am just destined to be a mother ! THANK YOU HALSEY FOR HELPING ME AN OPENING MY EYES SHOWING THAT IM NOT ALONE !I never knew this before you I love you so much I wanna hug you god bless 💜I’m 22 years old

  14. Since I was 12 I’ve suffered very painful and very heavy periods to the point that I would miss days of school every month. It got to the point that I was so weak I couldn’t even walk for the two weeks after without feeling like I was going to collapse. I went to the doctor recently as it has started to get worse. So now I’m waiting for the results and I really hope they have a diagnosis for me. I think it’s really good that Halsey has come out to talk about her endometriosis because there are many people who can relate to her story yet there is a lot of secrecy around the topic

  15. Funny that a doctor can look at u and tell but the only way to confirm and have a doctor tell u that u have endometrious is to confirm threw a surgery.

  16. If 1 in 10 women have it how come no one really talks about it? Like seriously.. Your chance of having it is quite high

  17. I'm so sorry that happened to you and so glad you decided to go bck to all those Dr. Office to inform them how ignorant they are to tell a patient they are faking an illness.

  18. All the women in my Family have it, and it SUCKS!! Halsey is the SHIT……and she speaks the truth about asshole Doctors!!!

  19. Multi-vitamins!!!!! Endometriosis is horrible. I've been diagnosed as well. Today I was having the most horrible pains ever almost unbearable laboring pains. I am not a person that like to take pain killers or any pills. I am sitting there in massive pain and I looked to my dresser and set eyes on a bottle of Multi vitamins since I am anemic and my cycles are heavy I said what the hey. I didn't take these vitamins in weeks and guess what? Immediate relief I couldn't believe it. I was hanging off my bed 5 min prior to not feeling anything. On top of that my period lightened up. If you can Please try so we can make a healthy observation.

  20. Yup ALWAYS TAKING MY GF TO ER AND ALL THEY SAY IT'S STRESS TAKE LOTS OF LIQUIDS ALL TESTS ARE NORMAL YET SHE WAS PALE AND JUST IN SO MUCH PAIN BUT THE EMERGENCY DOCTORS AT DIFFERENT HOSPITALS RELEASE HER GIVING HER IBUPROFEN FOR PAIN BUT NEEDS TO RELAX IT'S JUST STRESS

  21. Halsey been through the worst luck. Her struggles with health, money, and homelessness is what makes her so real and her successes so sweet. She is doing a lot to help others cope with her same situation and background, it's inspiring and humbling. If she comes tour near by I gotta support her, she's such a role model.

  22. What makes me angry is that 1 out of 10 women has it end doctors don't take women seriously when they say it freaking hurts, and they don't know how to treat it or diagnose it

  23. I finally got diagnosed in july 2018. I had regular cyst and a dermoid cyst as well as fibroids and during my lap they found out I had endometriosis. It was all over my bowels my bladder my uterus and my ovaries.

  24. Every endo sister knows this struggle on how we are told its all in our head. The struggle is real and the pain is immense.

  25. I’ve been experiencing Endometriosis symptoms ever since I started my period when I was 10 years old. Every period it’s the same I faint, throw up, have horrible bowl movements, I lose my vision at times before I faint. I’ve been to the hospital multiple times because the pain is so bad I used to scream from it being so unbearable. Now I just cry till I faint. I bleed like I’ve been shot. It just runs down my legs if I’m not using a tampon. I’m 17 years old and I’ve been dealing with this pain for 7 years now. It hurts so much.

  26. Much respect to her I bet that was tough..My mom also had endometriosis and had to have her ovaries removed in her early 30’s. As a young boy I never realized how hard that can be on a woman :/

  27. does anyone know what’s normal with intense period pains or when it becomes a possibly symptom of Endo

  28. Hello, I‘m 30, have stage 4 endometriosis and it spread into my lungs. My uterus and both ovaries were removed. I have no kids. Now I study human medicine to help other woman. I made an account on Instagram were I decided to post all the pictures of my life with endometriosis. The true about this disease. I also share science facts and tips how I got control over this disease. I had 11 horror surgery’s and hope I can help other women to believe that there will come better times. Can you share it?

    Instagram Account Name:
    endometriosissurvivor2014

  29. Girls, women, fuck western medicine, go to Chinese doctors! Five years ago I was diagnose endometriosis 2 stage after the surgery, I had endo cyst removed, I drank hormones but cyst came back again only half year later. Our doctors only suggested surgery again and more hormones, they dont give a shit and have no idea why endometriosis happen and they dont even care too much. Unlike Chinese medicine doctors, they do understand how endometriosis and infertility happens, they do observe your body. In my case I had too much dampness in my body, liver was not so well and I had bad blood circulation so Chinese doctor prescribed special mix of herbs to drink everyday 3-4 months and do acupuncture. Strictly no coffee, diary products, no cold drinks/foods, more dark red vegetables to increase blood quality and it helped alot! It reduced cyst, pain, I had no pain at all during period because blood was light and flow was easy = no cramps. I went to few other doctors and according to them i dont even have endometriosis anymore. Im not sure Chinese medicine cured it but it can help alot! Important thing is avoind pesticides, becouse chemicals in it disbalance hormone levels in your body and cysts happen

  30. If you suspect or have Endometriosis, find an Excision specialist. I had stage 4, along with Adenomyosis( often a co-morbid condition). I had surgery 2 yrs ago and I'm now pain free. Ablation, Lupron, and hysterectomies are not long term treatments for this disease.

  31. My mums friend has endometriosis. She had one child and then miscarriages 12 times. Her safe spot is when she reaches 12 weeks and is three days away from the point, so Halsey will suffer greatly getting pregnant but it’s not the end so I hope that if she does want children she knows it’s not the end.

  32. I was diagnosed with endometriosis at 21. One year later I was diagnosed with interstitial cystitis. If I could get rid of just one it would be interstitial cystitis. My endo is painful but I am managing it well. My bladder is basically allergic to urine so I can't have carbonated drinks or juice. The preservatives in food make it worse. If I have a glass of wine, I am done. The pain and symptoms will last days. It sucks to have a chronic condition.

  33. Wow I feel bad for Halsey. One she walked in half the audience clapped and did a fake excited scream. Than the Doctors looked at her all judgey eyed. Wow why invite someone to the show and make her feel uncomfortable. I like the show but wow this was in my eyes cringey. Who agrees? I am glad she got diagnosed. Halsey is natural talent.

  34. Oh bless her heart! I was misdiagnosed with ibs for several years, until finally, the right dr. Suspected endometriosis and did surgery. It was so bad I had to have a full hysterectomy. Endometriosis pain is no joke and kept me out of work constantly. It was so hard to hold down a job due the excruciating pain and almost lost my life in 2005 from it.

  35. I really don’t like Halsey’s personality at times but I really appreciate her doing this so people with endometriosis have someone to look up too.

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